LEARN MORE ABOUT OUR STUDY
What should I know and what do I need to do?
WHAT IS LOW GRADE GLIOMA?
A low grade glioma (LGG) is a slow growing tumor of the brain.
WHAT IS THE GOAL OF THIS STUDY?
The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family.
WHO IS ORGANIZING THIS STUDY?
The study is organized by Dr. Elizabeth B. Claus (Yale University School of Public Health and Brigham and Women’s Hospital Department of Neurosurgery)
WHO CAN ENTER THIS STUDY?
Any person over the age of 20 years with an initial diagnosis of LGG (astrocytoma, oligo-astrocytoma or mixed, oligodendroglioma)
WHAT ARE PARTICIPANTS ASKED TO DO?
The study asks participants to:
1) provide a pathology report and study consent form
2) complete an online questionnaire
3) provide a saliva sample that will permit us to look at changes in DNA.
If you allow, we will also review your tissue specimens and MRI scans of your LGG. Some participants will be asked to contribute activity data and perform neurocognitive tasks via their smartphone.
The consent form and questionnaire can be found here. Consent forms and pathology reports can be uploaded to the linked portal or emailed to firstname.lastname@example.org.
December 2018 Update
For regular updates, follow us on Twitter @gliomaregistry and on our Facebook Page.
We continue to work towards obtaining larger funds from NIH and others to move towards the genotyping phase of the study.
We have had a very productive year in terms of glioma research! Some of our recent findings include identifying new genes for LGG as well as identifying sex-specific genes for glioma. We also looked at the influence of obesity related risk factors for glioma. Links for some recent findings are included below.